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UpsnDowns provides support and advice for children, adults and families affected by Down’s syndrome in Northamptonshire. We work to increase awareness of Down’s syndrome and to promote positive attitudes and approaches within the local and wider community.

Formed in 2006 by a group of local families in Northamptonshire, UpsnDowns now supports more than 60 young people with Down’s syndrome and their families. UpsnDowns are here for you whether you have just received a diagnosis, already given birth to your baby or you have a child with Down’s syndrome. We would love to hear from you.

Run primarily on a voluntary basis by a board of willing trustees, the charity’s income is wholly dependent on fundraising.  Individuals, companies and our own special events have all contributed to continued growth, enabling us to offer a wide range of services and activities such as; speech and language therapy, sing and sign, and swimming lessons. 

In addition, we fund training for teachers and support staff in Northamptonshire to ensure schools are fully inclusive and the specific learning profiles of our children are fully understood. This enables both mainstream and special school staff to provide exactly the right environment to encourage development and maximise learning potential.

It is these experiences that have formed the basis of our organisation where our children have flourished with consistent support, advice and guidance. 

UpsnDowns is far more than a group just for our children; it is a network which provides support and friendship for mums, dads, brothers, sisters and extended families.

Whether you need someone to share a developmental milestone with, or someone to talk to, there is always someone here for you.

With the guidance of our dedicated trustees and the continued fundraising support we receive from so many, UpsnDowns is ready to meet the challenges ahead…and enjoy the ride along the way.

To get in touch with UpsnDowns, email This email address is being protected from spambots. You need JavaScript enabled to view it. or call 0777 1717460.