Hello, my name is Karen and I live in Barton Seagrave with my husband Christian, daughter Maddie and son Dylan. Dylan was born with Down’s syndrome, and it was through his arrival that my journey began with UpsnDowns. I am one of the original founders of the charity, which was formed in 2006, the year Dylan was born.  I feel privileged to have been a part of UpsnDowns since it began and to see how it has flourished over the last 18 years.

I work full time as a Team Leader and Paediatric Sleep Practitioner of the Sleep Right service in Northamptonshire who support children with a broad range of disabilities with severe sleep problems.